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A pregnant Tennessee woman who enrolled in federally funded research in hopes of saving her soon-to-be-born son from getting AIDS died last year when doctors continued to give her an experimental drug regimen despite signs of liver failure

Family members of Joyce Ann Hafford say the 33-year-old HIV-positive woman died without ever holding her newborn boy. They also said they never were told the National Institutes of Health concluded the drug therapy likely caused her death.

The family first learned of NIH's conclusions when The Associated Press obtained copies of the case file this month. For the past year, they say they were left to believe Hafford, of Memphis, Tenn., died from AIDS complications but began pursuing litigation to learn more.

"They tried to make it sound like she was just sick. They never connected it to the drug," said Rubbie King, Hafford's sister.

"If it were the disease, solely the disease, and the complications associated with the disease, that would be more readily acceptable than her being administered medication that came with warnings that the medical community failed to get ... to her."

(no subject)

Date: 2004-12-17 09:03 am (UTC)
From: [identity profile] theweaselking.livejournal.com
If they'd informed her of the problems and risks, they'd have documentation showing that they'd done so and that she specifically and explicitly requested that they continue treatment *with* the certain knowledge that she would die as a result of this.

And then they should NOT have continued treatment, regardless of her wishes.

And then they should NOT have lied to the family about the cause of death, or the results of the investigation into the death.

(no subject)

Date: 2004-12-17 01:28 pm (UTC)
From: [identity profile] wizwom.livejournal.com
They do - the experimental treatment document listed the risks of the Antiviral drugs, including Liver disease.

Should the doctor have been more on the ball? Yes.
Is he guilty of malpractice in the woman's death? Probably not.
Is it something I'd like to happen to a loved one? Deinately not.

The only semi-unfortunate thing about this story, from my point of view, is that the baby lived. Society would be better off with fewer people, especially with fewer idiots who cannot be bothered to look up information on drugs they are taking.

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